april, 2019

Abandoned in Denmark – Second opinion abroad?

The second opinion panel in Denmark is now called “The Advisory Panel on Experimental Treatment”.

It is very slow if you want to go this way, and very few Danish patients are referred to other treatment.

Take the initiative, there is no time to waste!

One possibility could be: CHARITÉ Universitätsmedizin, Berlin.

The University Hospital in Berlin is the largest hospital in Europe, and they therefore have great expertise with treatments for cancer that we cannot get in Denmark. Please note that Charité is not a private hospital but is public and offers treatment of foreign citizens mf payment.

At Charité there are many surgical specialties, such as liver/bile duct, intestine, stomach, pancreas, transplant, etc. – see www.charite.de

There are patients from all over Europe and the Middle East.

At Charité, a second opinion of your treatment options is free. The doctors are very quick with answers and you hear from them in a few days, either per. e-mail or pr. telephone.

If they think they can help you, you get an estimate price from the hospital. Unfortunately you can not expect to receive a refund in Denmark afterwards.

Price for surgery:

One must be aware that it is self-payment. An operation typically costs DKK 300,000, but there are also prices down to DKK 87,000.

Insurance:

Remember to check your insurance for critical illness, many have one that is typically approx. DKK 100,000 tax free.

It can be group life insurance, private network, trade union or profession. (Often ceases at the age of 60-65).

Practical advice:

Before contacting Charité:

  • Request records from the hospitals that have treated you and get a copy / DVD of the last scans (MR-CT-PET). Like with a description, but it takes too long to get it then send the scans without the description.
  • Brief description of your disease course: From the records, write a very brief chronological summary of the course of the disease and treatments – from the first symptoms to date. Remember to state gender, age, general health status, possibly weight loss, etc., and all contact information. The description is translated into either English or German and attached to the DVD.
  • Translation: If you cannot handle the translation yourself, we can refer to translator Pia Tønder, piatn80@gmail.com, tel. 2964 4478. Pia has extensive experience with this type of translation and can possibly. also help summarize your illness. You get an estimate price before Pia starts.
  • Histology / biopsy: Enclosed in Danish.
  • Blood tests: To be enclosed in Danish. The Germans would like to have informed the cancer markers CA 19-9, CEA and AFP, so ask to have these taken at the next blood test. If you don’t have them, they can live well in Germany without a first assessment.

Transmission to Charité (liver, bile, intestine, pancreas). Upon request, the procedure for international patients (without German health insurance) is that the above mentioned material, DVD with the latest scans incl. said information (summary of the course of the disease, blood tests, histology / biopsy) is sent by post or courier (eg DHL – do not use GLS) to:

Chief Technical Officer Univ. Dr.med J. Pratschke

Clinic for General, Visceral and Transplant Surgery Charité Universitätsmedizin Berlin – Campus Virchow Clinic Augustenburger Platz 1 D-13353 Berlin

For other diagnoses, see www.chartite.de or contact Silvia Rauch.

It is a good idea to contact chief secretary Silvia Rauch, pr. email silvia.rauch@charite.de or per. telephone: +49 30 450 552 001 so she is informed. She is the link to the doctors.

The doctors change, but she is always there, as she herself says. Or at FOOKiD we can assist you with this first contact, see below.

Economy:

Once Charité has received the above mentioned documents, the doctors discuss the patient’s data and then give notice of the possibility of treatment. If possible, Charité International prepares an offer of the costs involved in a possible. surgery (including hospital stay).

The patient transfers the money or pays with the mastercard upon arrival before he / she can be admitted to the surgical department.

Where can the next of kin stay?

One option is:

Virchow-Gästehaus Seestraße 4-5 D-13353 Berlin Tel +49 30 450 578062 Fax +49 30 450 578072 gaestehaus@charite.de

The hotel is in the Charité area, 5 minutes walk from the department (Station 20) and close to the U-Bahn. Price for double room EUR 89. Breakfast is included in the price. For individual approx. EUR 69 / night.

There is free parking in the adjacent parking garage (which can otherwise be quite expensive in Berlin). There are of course also apartments and other hotels in the neighborhood. Need help, advice and guidance – please feel free to contact:

Jacob Hansen: tel. +45 2488 9030, jacob@fookid.dk

Other options:

At Radiological Department At Frankfurt University Hospital, Professor Vogl is 100m master in regional chemotherapy of Metastases in Liver, Lungs and probably elsewhere. Just ask if he thinks he can treat you.

The procedure is quite simple, an email request directly to Prof Thomas Vogl, as short and precise as possible, he is a very busy gentleman and thrives best on answering questions with yes or no.

Write to: T.Vogl@em.uni-frankfurt.de Send dvd etc to: Johann Wolfgang Goethe-Universität Frankfurt / Main, Institute for Diagnostic and Interventional Radiology Att: Univ. Prof. Dr. With Thomas Vogl. Haus 23c Theodor-Stern-Kai 7 Hesse 60596 Frankfurt am Main Germany www.radiologie-uni-frankfurt.de

Heidelberg University Hospital, is a huge hospital and has, among other things, 2 Ion particle beam guns, a technology we have barely adopted in Denmark.

The hospital can do many things and they are technologically advanced so that queries are sent electronically and the same site uploads the latest scanning images. Same set of documents as mentioned Charité.

Use this link: https://www.heidelberg-university-hospital.com/index.php?id=2&L=en

With the hope for good improvement

Jacob Hansen